Dad & Amy: a list of Docs by specialty, Peace Health Bridge =PHB, and chronologically.

I have an email date for this. It was written about August 2012 when my parents Jerome Ernst and little sister Amy Ernst flew from the east coast and mid west to help with getting help for me, speaking to doctors, and spending a few days with me catching up.

 

Dad & Amy: a list of Docs by specialty, Peace Health Bridge =PHB, and  chronologically.

 

Chiropractors-Homeopathic all private 541-636-3358

Chris Ostertlize Sep 2010-feb 2011 (I realized he was doing more damage than good.) He was happy to help under insurance. I saw him too long, and he was stabbing in the dark. MRI lower back found no problem.

 

Kevin Muzzana 541-726-6521 Nov 2010-May 2012 (Each time he has refused to do much work on me stating it was beyond his knowledge.) He has referred me to Dr. Lin 2X both times once before my trauma and just a month ago. Took 3 x-rays before my both traumas’ (on  Dec 21, 2010 spine hip shift and 1 month later neck then arms shift)

 

Marrie Caverack 541-342-8106“Cranial Sacrel Therapy” Nerve and energy manipulation.

The only person who could put me back together and relieve severe pain. I could barely walk in her office and walk out fine mush better. She could also fix my neck and re-align my shoulder blades. Setting my arms again. Amazing work. It was seeing her for two months with no full relief I ordered a MRI of my neck. (I was under Dr. Thomas but just for paperwork) Dec (late)2010- March 2011. I decided short after my MRI to revisit Dr. Lin. He began looking into my case and ordered several x-rays of my neck from several angles, but before I got to follow up with him the Alstate Insurance ran out. Alstate called all my medical billers. I had to cancel last two appointment’s with Marie Caverack bill of 1,400 outstanding. Most of my severe dysfunction and skeletal movement happened from Dec 2010 to Feb of 2011, as the dysfunction continued to run trough my body. When I stopped seeing Marie I slowly lost heavy ground with my dysfunction.

 

Primary Care Doctors PHB

Dr. Yoder April 2011 June 2001 I waited 3 months for him to tell me it was in my head. PHB Rude short. Had me do a push up on wall, touch toes, lift arms (bicept) and grab his finger. (sounds like a bad joke)

Dr. Workman Nov 2011 Feb 2012 waited another 3 months for her to tell me. I was having panic attacks. Condescending/placating. Mixed up on meds 3x. Refused nerve conduction study test even after told me she would, then receiving an order to from Dr. Lin Rehabilitative Medicine Country Club Road  ignored it.

Dr. Bigley 541-342-3338 current since February is doing what he feels is right. Still totally lost. Ordered eeg for epilepsy. Wants to send me to movement specialist. (Always in a hurry, but responds to reported concerns). Nice manner. Obviously concerned. 1^st doctor besides several Urgent Care doctors who said it wasn’t in my head.

 

Specialists

After Dr. Yoder I went to Dr. Macha at Slocum center . June 2011- Oct-2011 http://www.slocumcenter.com/physicians/thomas-j-macha-m-d

 All this free, by his word I bet. (It was the cookies and a letter. Business office cleared all bills)

Dr. Mach orthopedics specialist.

Saw me twice. Diagnosis something in my neck was causing symptoms.

His staff including Dr. Philips localized electronic nerve test forearms.

Dr. Pam rehabilitation specialist. She agreed with Dr. Macha

Personal aid and Doctor who researched Genetic diseases Hodgkins types of MS. She agreed with Dr, Macha. My neck.

Ordered several in house x- rays of shoulder. Shoulder fine no tears.

Ordered MRI 2^nd of my shoulder (All I asked him to do was my shoulder)

And MRI of my Neck the 2^nd one. He sends me to Dr. Lin ….. but I have to stay in PHB to I am sent to Dr. Haulk . Dr Macha says he wants to see me back in 6 weeks. I wait. In 6 weeks I go back and say. I never got called. A nurse called a supervisor at PH Dr. Haulk’s scheduler 5 weeks later. I see him. I wait in a waiting room for 2 hour talking to his assistant with a full history including docs and symptoms of dysfunction for ½ hr. He walks in for about five to ten minuets. He says my neck is better. But I had to be the one to bring up my 1^st MRI, and ask. He was quick with me,(I had to remind him of the 1^st MRI, he hit a few buttons and never shows me the screen) and with a glance he said I don’t need surgery, and neck was healing says he will order Electronic nerve study of my back to make sure. He refers me to Dr. Lin. I tell his staff and him I have to stay within PHB. I never get a call and call six weeks later after constant questioning, I find out because I had a local one on my arm the study had been canceled. I came into find out what to do, and I was out of medication. I was sent to Dr. Workmen.  

 

2^nd visit with Dr. Haulk  541-222-2880 May 2012 sent by Dr. Bigley. I have written letters to David Alison 541-222-7300 (Main hospital center receptionist) at “Risk Management” human resources, about care level I was receiving at this point. I mentioned the MRI’s. I wait 2 hrs again. He shows with his assistant and an intern. (We were hoping to have Diane Dulin make this visit with me. She couldn’t make it, I got stuck going alone again) He again says I don’t need surgery. He shows me the pictures like a small boy and curious George book. You see I have been at Dr. Lin’s office and had been educated on MRI’s like a man giving directions to another. Dr. Haulk acts like he wants to begin attempting to diagnose my dysfunction. States “Lets get a Nerve conduction study, and if problems keep persisting we will get another, MRI” He ends by saying he will send a note to Dr. Bigley’s office for me to be scheduled for Nerve conduction study. I find out from Doc. Bigley’s assistant that is not what he wrote in my chart. In fact it seems he felt that no further tests were needed.

 

Dr. Lin  Nuero and rehabilitative medicine 541-683-4247 (You paid for the first visit) (Insurance 2^nd and 3^rd but blocked 4^th follow up visit with Dr lin. 

Began seeing me in Nov 2010 for the left side spasms. Ordered MRI of Neck and Brain. Looking for bleed and reason I had major shift in neck causing a black out and electric shock. 2^nd trauma. Spent 1 full hour in his office trying all sorts of things, with movement, and put his hands on me more than any other doctor looking for answers. We had a conversation “White boarding ideas”and I was an equal part.

I returned for a follow up (2nd visit) Dec 2010 he showed me the MRI’s, how to read them, where I was having problems, and how much damage had been done (extensive wear) was the phrase he used. He told me what was a normal size for spinal core and showed me how mine was compressed, not to a point where surgery was needed but close if it got worse. He would want to go in and fix it. He wanted to keep a watch on my neck and condition progression.

3^rd visit March. He says he wants to do a full Nerve conduction study on my back, gather all information and decide where to go from there. I am happy when I tell Marie during one of our sessions that he is attempting to find out the why. Alstate refuses to pay for study and follow up with Dr. Lin.

 

Again all care stops and I begin waiting for PHB to send me to Dr. Yoder.

 

Dr. Whitely PHB psychiatrist 541-744-0828. Feb 2011- July 2011. I full filled my obligation to Dad to get a mental health assessment. (part of my condition of having a home and support).

I have dropped out of school, I am unable to walk well. He puts me on Seraquil an anti-psychotic. I ask him about Klonopin he refuses, said the effects are like alcohol, and he doesn’t want me near anything like that, or pain pills. “Addict” I told him when I met him. I have spasms that look like seizures. A few sessions later he tells me it’s all in my head. I never get a definitive answer for the diagnosis. As in stress, mental illness, epilepsy. My final session he says “Why don’t you tell people you are having spasms and stop calling them seizures”.  I end my sessions with him and I am mad when I do it. I make a point of saying I don’t need some one f*&^ing (I didn’t say it out loud but the loud beep I kept making while honking my point home expressed my outrage. Kind of funny doc’s popping out doors in the office wondering who is beeping loud.) with my head after going through a trauma and losing my ability to walk and mobility was enough stress.

 

Dr Unger psychologist 541- 513-1811 April 2011- April 2012

The one person who listened and helped in some fashion to deal with the change of life I was experiencing, and stress levels. Could not follow through with creating a plan and I out grew need for discussion. Tired of talking. Action and a plan is what I wanted.

 

Dr, TewLew Psychiatrist. Private “Oregon Psychiatric Partners” 541-726-9912

We start with Zantac like Klonopin but time released and more expensive. I am having spasms non-stop and been up for days. We also start with Trazadon for sleeping. Prozack for depression.  I have a good relationship with him. We drop meds that aren’t working. Flexeril ( I was taking 4 fleril and getting no relief from spasms 1 tablet of Klonopin lessened effect more) Prozack well the truth is I was unhappy, depressed because I was going through a major and scary change of life, while battling a debilitating dysfunction. The five stages come all at once working towards acceptance is the goal of dealing with all these emotions.

On my last visit we decided a companion animal would be way more effective than drugs, and help with my forced solitude. He wrote a prescription for a companion animal.

Her name is Freya she is a 10 lb Bob Cat kitten should grow to about 30-40 lbs a real terror. I have worked out a way to pay for litter and her food and little stuff. She was a infested kitten. I have tried to de-worm her with tobacco, she got fleas so I bath her gently (She’s still to young for flea shampoo) She has ear mites. I need to get her shots, pet store, and meds.

You were going to find out anyway. She follows me everywhere, makes me laugh, drives me nuts, sleeps with me. I’m not as lonely.

 

I could go into the several Urgent care visits, for several falls and localized paralysis. (Was treated well at Urgent care an attachment to PH) I could go into the 7 Ambulance rides, how I was kicked in the foot by a Paramedic and told to stop faking, or put on back boards which is a sure way of causing me spasms. I could relate the many times I refused Ambulances or medical attention while I was having a severe spasm in public (50+). I could relate being grabbed out of a bed by my jaws by a nurse and cursed at, and then while the security guard looked in a doctor came and screamed at me, “It’s all in our head, get a ride home and stop coming in here wasting our time.” I got up while having medium spasms, they had been going on for two hours with no breaks, attempted to storm out but could barely walk so storming turned into bumping into walls and falling down. I went and fell laying in front of the ER having spasms for 45 min. A security guard same from inside, Douge, nice man waited with me and procured a taxi voucher. We talked while waiting for my spasm to subside.

I could mention all the other who lent a small hand in my care or lack of, but the above about covers it.

p.s. 4 days 10 hrs to write.

 

Appointments with

Dr. Lin Aug 6^th 10:30 am cost 240$

Dr. Bigley Aug 6^th 3:15 pm PHB

Dr. Tewlew Aug 6^th 1:45 pm

 

I called:

Bob Smith my Attorney waiting for call back 541-345-7211

Dr. Whitely PHB ‘He may not want to accommodate an appointment is the impression I got. Waiting for a call back by his decision.

 

I could call Dr. Tara Workmen, and Dr. Yoder. They share the building with Whitely.

I am waiting to call Rick Montoya owner of Osteria Szfizo for dinner reservations.

Erin is holding both days free. 541-461-0891

 

Read with Amy prepare questions on clarification. I will explain what happened physically and mentally when you are here. I’m glad Sherlyn is coming. I can’t ever remember how to spell her name. my computer says 2 n’s I want to put an e in there somewhere. Dyslexic & a writer. I type so slow. TG for spell check.

Amy I wrote many emails over the years to dad about my condition and changes. A lot of info. Just a thought. I can be more succinct verbally with the hands nad feet moving.

And

Well Thank you,

Two years alone fighting this battle all alone.

Love John