I would like to sum up the last year. My mind set, was to be
healthy any way possible. I found a working combination of meds that help and
in combination with my constant physical therapy meaning in short if I do not
force my body to work everyday in some form my dysfunction becomes very active,
but does not stop my dysfunction. Every morning I have to start again, and if I
miss a few days of PT or sleep due to pain, I am in trouble; I get worse fast
in days. If I over do it, I have to go on a sleep schedule to catch up and
heal. It is a constant internal battle
quite amazing to say the least. I try to create levity for I long ago began
living in “My Time”, and I wish it to be enjoyable while this takes me. The
pathology of the initial traumas continues to work and my dysfunction hard as I
try to stop it moves forward. I begin to wonder if even getting medical now
would be able to reverse the pathology that has occurred.
I have been under Dr.Bigely care for the last year.
He started to create a working relationship with me, and was
genuinely interested in my case from the beginning. He ordered an Epilepsy
test. I did not know that was what the test was, for I knew it of no use. I
went through it anyway with Dr. Jensen.
Dr. Jenson What to
say. Condescending I think for to others my dysfunction disguises my
intelligent mind, well she spent her time more talking about the fact that Dr.
Lin and Dr. Macha the very two doctors and staff who treated me outstandingly,
with info, investment of medical knowledge, several doctors at the Slocum
center, Dr. Philip said while we were taking an electronic nerve test on my arm
just after Dr. Macha had popped in the door, “I have never seen him take such a
personal interest in someone’s case before.” I said, “It must have been the
cookies and the letter.”
I was saying these doctors made a real effort to diagnose my
dysfunction from the beginning and most of all I was treated with dignity. So here I got Dr. Jensen telling me they are
not in their field of study and don’t know what they are talking about, and the
mind is a very powerful thing and can make you ill. Hogwash, pure run around
and throw water on the pig hogwash. Okay I wrote that for a smile. She spent
very little telling me what I already knew. The test was negative. The skin
test of course would be negative for we’re talking about muscle skeletal issue.
Simple logic, I read parts of Grays Anatomy when I was 13, and was in honors AP
Biology at 16, gaining college credit.
Back to Dr. Bigley a little PT but I am still not getting
better. I have one more test to check my lungs than that was it. I give. I’ll
do it my self. I began different pt programs using the knowledge of 2 years
living in this dysfunction. Dr. Bigley is down to find a mental health
counselor to deal with problem. (Got that on video direct note read.)
Sir I fall a lot, the damage that grinded away in my neck
just causes me to drop and then have fits looking like seizures, but I’m awake
the whole time trying to figure out how to stop them and get up. Some times
they are real bad taking apart my living area. I have broken several pieces of
furniture. I have a you-tube video show Chef John the Ghetto Gourmet, and a
blog TheEyeofThor.blogspot, and a LinkedIn page as well as several face book
accounts. There is no way you are going through all that footage, I’m not
either. Let’s say if I had a bad one and could I got it on film. I don’t load
those, did once, and deleted it. I saved several for you, for this case but thought
it in bad taste. Enough can be seen on just a few videos, and that is enough
for me. I have 900, mostly about cooking.
So there you are. I fight. I wait. I do good things with my
time and “Shine” bright. I waited for this hearing in some way, to help Dad
financially, but for me. I decided I got little time left, getting around on my
own, I have pushed it a long time, I have run a long time, exercised in PT
fashion, in any fashion to give myself more time, one more summer. I fall I get
up. I never stop. Feel me?
Thor
Respectfully,
Chef John Arthur Ernst
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